Magical Farewell Planned Thursday To Honor Owensboro’s KingNazir Gates & You’re Invited
The community of Owensboro, Kentucky are invited to celebrate the precious life of KingNazir Gates as he takes his final horse and carriage ride.
THE BEAUTIFUL LIFE OF KINGNAZIR
KingNazir Gates is a strong six-year-old little boy from Owensboro who was born into this world with a very rare genetic disorder. We asked his mom Lakeia to share is life with us;
King'nazir was born Feb 1 2016 to Lakeia Nard and Carl Gates Jr. His siblings include; Muhan Nard, Armani young, Jai'ameis white, and Semaj white. He was a happy-spirited and always smiling individual from the beginning to the end. Born with an extremely rare disease SPTLC2 gene mutation, falling under the pediatric ALS umbrella. He was misdiagnosed 3 times and seen by over 20 doctors. Dr. Lakohtia worked effortlessly to find answers and got in touch with Dr. Bonnemann with the NIH (National Institutional of Health) I was able to connect them with Dr. Timothy Yu with Boston children and they all came together to begin research to find a cure. He was producing too much fatty acid coA serine long chain as well at autism. His muscles were not signaling to his muscles properly and he would so all mobility and functioning. He lost his ability to walk at 3 and he would regress every year until his lungs failed and his heart stopped. At the time of diagnosis at three, he was the second person and the first boy in the worldwith this disease, four more families have been found since. King'nazir loves the outdoors, traveling, water and animals. He is so smart speaking Spanish and Portuguese at the age of 2 years old singing and knowing all his shapes and colors. King'nazir has been a fighter, who adapts quickly to his deteriorating body. Never sad, mad, or crying about his condition, he has smiled and adapted to each stage. He loves music, classical only during bath time, animals, outdoors, water and parks, and his video shows. Because of him, I created melanin Children Matter Inc servicing children, healing families, and educating society while enhancing awareness surrounding childhood rare diseases and resources for autism.
A FINAL CARRIAGE RIDE TO HONOR KING'NAZIR
King Nazir came home earlier this week to rest peacefully with his family until he passes. His mom has planned a final carriage ride on Thursday. He is a fighter and always has been. Anyone who would like to show support for KingNazir and his family please join us at Smothers Park on Thursday at 2:00 pm. We all have people in our lives who are affected by rare diseases. KingNazir was the first boy in the world diagnosed with his disease, SPTLC2, a form of pediatric ALS, or Lou Gerhig’s disease. His mom wants to continue to help other children with rare diseases and autism so they don’t have to experience what her son has. If you are not available Thursday you can show support by contributing to the costs of his final carriage ride or celebrating Rare Disease Day on February 28.